No one likes to feel that life has spun out of control, and nothing can make you feel more out of control than if you or a loved one is diagnosed with a terminal illness. Fortunately, hospice care can help you or a family member regain your equilibrium and not only face death on your terms, but also to live your remaining days to the fullest.
Hospice care is a relative newcomer in patient care. Dame Cicely Saunders founded this type of care in England in 1967. It came to the United States in the mid-1970s, and is rooted in the Christian principles of comforting the suffering physically, emotionally, and spiritually by enabling patients to live their last days to the fullest and die a natural, dignified death. Originally a volunteer movement, today it is estimated that there are more than 3,000 licensed and certified hospice programs nationwide.
Many misconceptions surround hospice care. Hospice is not about dying, but living as symptom free as possible while making the most of your remaining days. Hospice is not just for cancer patients, but is valuable for anyone with an illness, regardless of age, who is nearing end-stage conditions. Hospice is different from palliative care, which provides care to seriously ill patients who are without a terminal prognosis. Medicare usually provides for both palliative and hospice care, but be sure to check with your provider.
A patient need not be bedridden to be admitted to hospice care, and may continue to lead an independent, productive life. Hospice is usually recommended by the patient’s physician, but it is the patient’s right to decide when to seek it. Hospice is suggested when the patient’s longevity is estimated at six months or less, and it is optimal if the patient seeks care sooner rather than later. Sadly, hospice care is sometimes sought when only days are remaining, cheating the patient of peace of mind and choice of care. Early intervention allows the patient and their loved ones to establish a relationship and build trust with their hospice team – the patient’s physician, nurses, nurse’s aides, chaplains, therapists, social workers, and volunteers.
Furthermore, many falsely believe that once a patient enters hospice care, curative treatment is no longer permitted. At any time, a patient and his or her family have the right to reinstate former medical treatment. Also, if the patient has been discharged from hospice care and their condition worsens, the patient can be readmitted to hospice care. Patients have the right to choose their hospice provider, and it is advised that the patient and/or their family interview various hospice programs to find the one that is most compatible with their needs.
Fortunately, the Pittsburgh region has a number of excellent hospice programs. Some are national programs, while others are locally-based. Below is a list of some of the hospice programs available in our area.
Anova Health Care
Catholic Hospice & Palliative Services
Compassionate Care Hospice
Gentiva Home Health & Hospice
Good Samaritan Hospice
Heartland Hospice Care
Hope Hospice Pittsburgh
St. Barnabas Health System Hospice Care
Seven Oaks Hospice
Sivitz Jewish Hospice & Palliative Care
VITAS Innovative Hospice Care